Living with Fibromyalgia
you don't have to suffer alone
Welcome to my journal about living with Fibromyalgia.
image

crps-chronicpain-ptsd:

Chronic pain ➰ a very refined Pyschological torture.

Truth •

image
  • Chronic pain problems •

And one wonders why #ptsd is often a result of having to deal with chronic pain. For me, when I have to go Outside, I live in terror of someone jostling me without my being able to brace for it. I’m sure my scream of agony would scare the crap out of whoever accidentally did it. So one walks all tensed up, prepared for war, per se, because being touched often hurts like freaking hell.

crps-chronicpain-ptsd:

According to my best recollection I don’t remember.

Chronic pain problems•

Brain fog•

My damn feet *hurt*

So lately, the very bottoms of my feet have been really painful and often completely  numb, too. I particularly notice it when I lay down for a nap or to sleep (with my personal babysitter, bodyguard and supervisor, Rune, of course). Ian (the BF) told me this can be potentially dangerous for someone with Diabetes and that it can lead to severe ulcers on the feet. He said I should definitely talk to my primary doctor about it, and so I did.

Unfortunately, there is no coverage while on Ontario disability for a podiatrist. So my doctor recommended I talk to my ODSP worker to see if she knew of a program or if I could be referred without having to pay for it, especially if my doctor required or recommended my seeing a specialist. We shall see, I’m going to call her on Monday. 

More pain meds don’t really help. Oddly, muscle relaxers do but the Baclofen I’ve got a ‘script for gives me some nasty side effects. Like, oh, combative rage (sometimes, but certainly more “attitude” with a lot of salt) but worse is the extreme lethargy and need to sleep it off like a drunken sailor who passes out in their clothes. Not funny, mostly. So yeah, when I have to take the Baclofen, it pretty much guarantees the entire next day is a wash. I really do not like having to take it but on days where cramps are too much, the nerve/muscle pain is too much or I haven’t been sleeping much or at all for a few days, Baclofen to the rescue. Followed by a day or so of complete #confuselessness 

So here’s hoping ODSP has some kind of solution for me being able to see a foot specialist. Or something.

thefibrodiaries:

I swear my illnesses collaborate so that when one takes a break another flares up

sarahbeara113:

Disability is not a dirty word

Disability is not a dirty word

Disability is not a dirty word

Disability is not a dirty word